This centre conducts high quality, independent research into different skin conditions. As well as providing a collection of free resources, it encourages patients and families to get involved in the research through participating in studies or joining a Patient Panel. The Centre also collaborates with patients and parents in producing the Nottingham Support Group for Carers of Children with Eczema, providing support and information for families touched by eczema, mainly through web-based media.
In addition to providing independent and practical advice, the National Eczema Society campaigns to raise awareness of living with eczema with healthcare professionals, schools and the government. Amongst other activities, they run a free Helpline, develop free resources for the public and professionals, and provide information about Regional Support Groups.
Eczema Outreach provides 1:1 support to families and children living in Scotland. They run ‘Learn and Share’ events throughout the year to enable families to meet and share their experiences, as well as the ‘High 5 Club’ for children. They also have Outreach workers who run workshops at local schools to raise awareness about eczema.
Allergy UK is a national charity providing support and advice on living with allergies. Their website includes a section dedicated to eczema with free factsheets to download, advice and case studies for patients and families and information and resources for professionals.
The BAD is a UK charity set up to research and provide advice on best practice in dermatology. They are always keen to hear from individuals who can share their stories to help raise the profile of living with a skin disorder.